In this course, you will learn about the characteristics of CER/PCOR, compare and contrast CER/PCOR studies and randomized controlled trials, and you will hear how PCOR researchers have overcome a variety of barriers to ensure patient-centered care.
This course includes the following 11 lectures:
Engaging Patients and Stakeholders in Patient-Centered Outcomes Research
Principles of Community-Based Participatory Research
Shared Decision Making in Cancer: Models and Methods
Patient Decision Support Tools in Cancer
An Overview of Patient-Reported Outcomes in Cancer
Designing Surveys: Asking Questions with a Purpose
Qualitative Methods of Research
Dissemination and Implementation Research in PCOR: Translating Knowledge Into Practice
The Role of Health Literacy in Patient-Centered Outcomes Research
Cognitive Impairment and Participation in Research
Behavioral Interventions in Patient-Centered Outcomes Research
This course is intended for anyone interested in comparative effectiveness research (CER) and patient-centered outcomes research (PCOR) methods.
This course is supported by grant number R25HS023214 from the Agency for Healthcare Research and Quality.
Syllabus
Engaging Patients and Stakeholders in Patient-Centered Outcomes Research (PCOR)
Patient and stakeholder engagement in research, principles and benefits
Tips for engagement
Principles of Community-Based Participatory Research (CBPR)
CBPR definition, principles, benefits and challenges
CBPR versus traditional academic research
Shared Decision Making (SDM) in Cancer
SDM models, definitions and myths
SDM intervention effectiveness
Patient Decision Support Tools in Cancer
Patient decision support technologiesand clinical guidelines
Informed decision making, shared decision making and patient decision support technologies
International Patient Decision Aid Standards collaboration
An Overview of Patient-Reported Outcomes (PROs) in Cancer
How PROs differ from other outcomes
Choosing PROs
Study design and PRO components
Designing Surveys: Asking Questions with a Purpose
Survey purpose and types
Survey samples, question design and format
Reliability, validity and sources of error
Qualitative Methods of Research
Qualitative and quantitative data comparison
Mixed methods
Thematic content analysis
Dissemination and Implementation Research in PCOR: Translating Knowledge Into Practice
Common dissemination and implementation research questions and outcomes
Path of research to practice
Diffusion of innovation and the consolidated framework for implementation research
The Role of Health Literacy inPCOR
Health literacy and its importance and impact on health status outcomes
Methods of assessing health literacy in PCOR
Cognitive Impairment and Participation in Research
Capacity to consent to participation in research
Ethical involvement of cognitively impaired subjects
Involvement of surrogate decision-makers for impaired subjects